Our miracle baby on days 3-7

Welcome to days 3-7. Days 3 and 4 we not very eventful. We were just pushing IV fluids and trying to get her healthy enough for surgery. Monday afternoon she was scheduled and we took her down to pre-op ready for her to get it done when her surgeon got stuck on a tough case and decided to put her off another day. So Tuesday was a not so patient waiting day to see if she was going to get it done then due to her being an on call case. Her on call time came and went and we started to loose hope that she was going to get it then either. Well a few hours passed and her surgeon called up for her and they took her down and prepped her. She went in at 4 Tuesday afternoon and surgery took 6 hours for the nissen and they also found a hiatial hernia which was causing her stomach to go up into her chest when she was retching. So basically they sewed her stomach in place and wrapped the top of her stomach around her esophagus. She came out of surgery well (better than the last 3 times). She was given narcotic pain meds and slept for about a day and a half after surgery. She has been able to be off the narcotics for a few hours now and finally sat up yesterday so I after a very long wait got to hold her for just a little bit. Today she is being closely monitored for pneumonia because she has a bad cough and fluid sounds in her lungs. She is higher risk because of her weakened immune system. We were also told during surgery they found her very first surgery which was a cleft repair is coming undone and will have to be fixed. So we are waiting to hear when they are going to want to do that. That will be surgery #6. She has still not been able to clear her cdif which is also slowing her recovery a little bit. Overall she is actually doing better than expected. We are waiting for some answers to see when we will be able to bring her home again. This surgery is supposed to make a big difference and we are anxious to see what our new path is going to bring for us. We have such an amazing support system and could not be more blessed. I know a lot of people see the tough side of this but God blessed us with Kylie for a reason and our lives are better for having her and all of this is worth it. We are going to look back at all this one day and she is going to laugh at how much of a little stinker she was. Thank God for miracles!