We are in Elko, Nevada this week to spend time with daddy. This is Ky's first vacation since I was still pregnant when we went to Texas. I was very nervous about bringing her on vacation but she seems to be handling it well. She is trying with all her might to sit up the last couple days which for me is bitter sweet it shows how far she has come but also that she is growing up and I want her a baby for as long as possible. She had therapy before we left and her therapist said she still can't eat orally because she has forgotten how to use her tongue functionally. We are going to continue with her exercises daily and weekly visits to her therapist and will hopefully have her trying to eat again in the next few weeks atleast once a day.
My goal for this month is to break even the smallest amount of dependence on her 24 hour drip. Her disposition continues to improve and she is a very happy baby with lots of silly expressions. Another quirk of her's is holding on to her tubing she thinks it's fun to tug on it. Silly girl!